Monday, May 25, 2009


We are pretty much in a state of limbo at the hospital. Yes, you read that right. Ayva is STILL in the hospital. This Wednesday will make it three weeks. :( They still have no idea what caused all of these things to happen, but will be followin up with her **when** she goes home. Her blood levels are remaining stable, but on the low side. Her potassium is still low, but is on it's way up and is pretty close to normal. Her sodium came down and is still high, but is also close to normal. Her BP's have been excellent (thanks to 2 BP meds!). SOOO as soon as she can stabilize her electrolyte levels (her potassium and sodium in particular) by herself, she can go home!!!! I am thinking it will be Wednesday or Thursday, but who knows! Ayva's last ACTH shot will be Tuesday~~ thank God! Even though it made her seizures go away, I will always call it the shot from HELL!! Other than that, our lives have pretty much been on a hiatus. Justin has been staying home with the Anna and Justin and you can tell they miss their mommy and sissy. They just aren't acting their usual happy selves.

Anyway, I just want to thank everyone who has been supporting us and helping us out during all of this...Mom, DeeDee, Grandma Dean, Julie, Debbie, etc. We really appreciate everyone who has prayed for Ayva and can't thank you enough. I will update again if I get anymore news and hopefully it will be from home, with our little fighter, Ayva.


Sarah said...

I'm sorry to hear that you are still dealing with this. I hope all is better soon.

Annie said...

So sorry that Ayva is at the hospital. Hope she gets well soon.