I just wish for...for a boring life. Does that make sense? I wish for that...a "normal" life for all of us. Why should my girls have to suffer? Why is it that out of every set of multiples that were born as early as ours were, OUR girls drew the short straw(s)? I just can't understand that. I may never understand that. I'm not sure that I will ever be ok with not knowing why, but I don't have any other choice, do I? And I know some people say "Well God chose you because you are strong" or "He chose your girls because they are fighters". Well, I say to that- That's total bull shit (pardon my french). What if we were weak, would that mean my girls wouldn't be suffering now? Would that mean that if we couldn't deal or handle the life we've been given, we would have been dealt an easier life? I bet there isn't a person in this world who is strong enough to be happy with watching their child(ren) suffer and say "Well God chose us to suffer because we are strong and can handle it". And like I said before, I love my children, love my husband, my family, but not one day goes by that I don't wish things were different for them. I would sell my soul to the devil to keep my children from suffering. Even if that meant I could never enjoy them being happy and healthy. I would be ok with that. As long as THEY WEREN'T SUFFERING! I would sacrifice anything for them to be healthy and happy.
I look at my children everyday and feel whole-hearted love and pain at the same time. Pain for Justin who isn't getting to grow up with his sisters. Pain for Anna when all she wants is to follow her brother around and play with him, and be close to her sister. And pain for Ayva. I have to look in her eyes everyday and see that she is in there somewhere, just trapped. Trapped in her body. Trapped with a brain that can't stop having seizures.
How do you look in their faces everyday and not cry? Cry for them. Cry with them.
The world is a very unfair place. A place that I cannot understand. And these days it gets harder to try to understand.
It's like a nightmare. A horrible nightmare that won't end. Only I don't think we will wake up anytime soon...I don't see an end...when will we wake up?