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22 months

The trio turned 22 months yesterday. Two more months and they are 2. I can't believe how big they are now. Although, it doesn't seem like this year has been moving at all. It seems like we are at a stand still. Tomorrow we will know what Ayva's EEG said, and also we will be talking about weaning Anna off of her Topamax dose. She has been seizure free for 13 months now. I'm sure there will also be talk of putting Ayva on the Ketogenic diet. Which will require at least a 48 hour hospital stay. And also I'm sure there will be talk of the Surgery Clinic appointment she has on the 22nd about a feeding tube. Life stinks. Anyways, we are just taking it one day at a time....so I will leave this depressing post off w/ some pictures.

Also I have a website for my photography. You can go check it out! www.wix.com/saucysarie/sarah

What Infantile Spasms looks like

As I sat and watched Ayva have her EEG yesterday I thought about her poor little brain. It's probably hard to understand unless you know what brain waves look like when constantly having seizures versus not having any. So the first picture is of a child with Infantile Spasms.

Crazy. The lines are jumping all over and what most people call "chaotic". This is what Ayva's brain waves look like. I secretly watched the screen yesterday (usually they turn it to where I can't see it). I just sat there and stared... I knew what it was saying. Ayva is still having seizures even though I can't tell by just watching her. At some times Ayva's brain waves calmed down, and other times it was even more chaotic. I'm sure the Neurologist will tell me on Thursday what that means exactly. If it's better than before she went on the Depakote, we may try to increase her dosage and see if that helps. If not, then we will be moving on to the Ketogenic Diet. I think this is pretty much our last chance to stop these horrible things. Anways, here is a normal EEG so you can see the difference...The lines are moving still, but aren't jumping all over the page like the picture before it. I think the picture pretty much explains itself. You can obviously tell between the two that one is more "chaotic" than the other. It's just so weird to know your daughters' brain is behaving so erratically. Especially since there is virtually nothing you can do.

Justin aka DADDY turned 25 this weekend!!

We've been pretty busy this weekend. Justin turned 25 on Friday and we went out to dinner. Then on Saturday I had a surprise birthday party planned for him! And on Sunday we all went to Santa-Cali-Gon Days! It was busy, but lots of fun!

Picture Post

Nothing new is really going on in the Fields' houshold....lots of appointments, busy busy busy. Ayva has a feeding eval on Thursday and next Monday, Anna starts aqua therapy! So I will update again after those exciting things and let everyone know what went down....

Terrible, Terrible news...

A fellow triplet MoM is going through something no one ever wants to. She is watching her precious baby suffer and praying for a miracle. Please keep sweet little angel Annaleigh in your prayers tonight, she needs all the prayers she can get.

www.threecheersforbabies.blogspot.com

Our 1st Trip to the Zoo!

Last Wednesday we took the kids to the Zoo for the first time! It was REALLY hot, but we had fun anyway!