Tuesday, September 15, 2009

What Infantile Spasms looks like

As I sat and watched Ayva have her EEG yesterday I thought about her poor little brain. It's probably hard to understand unless you know what brain waves look like when constantly having seizures versus not having any. So the first picture is of a child with Infantile Spasms.

Crazy. The lines are jumping all over and what most people call "chaotic". This is what Ayva's brain waves look like. I secretly watched the screen yesterday (usually they turn it to where I can't see it). I just sat there and stared... I knew what it was saying. Ayva is still having seizures even though I can't tell by just watching her. At some times Ayva's brain waves calmed down, and other times it was even more chaotic. I'm sure the Neurologist will tell me on Thursday what that means exactly. If it's better than before she went on the Depakote, we may try to increase her dosage and see if that helps. If not, then we will be moving on to the Ketogenic Diet. I think this is pretty much our last chance to stop these horrible things. Anways, here is a normal EEG so you can see the difference...The lines are moving still, but aren't jumping all over the page like the picture before it. I think the picture pretty much explains itself. You can obviously tell between the two that one is more "chaotic" than the other. It's just so weird to know your daughters' brain is behaving so erratically. Especially since there is virtually nothing you can do.


Lani said...

Just wanted to say I'm sorry you have to go through this. It just isn't fair, and I can't imagine how hard it must be for you to see this going on with your little girl and not be able to do anything about it. I hope you guys can find a treatment plan that works for her soon.

The Blatchford Family said...

Hugs! IS sucks. If you end up moving on to the Ketogenic diet, I am wishing you guys so much luck. I know you have been dreading this step, but I hope that it ends up doing the trick. Keep us updated!

Annie said...

My prayers are with little Ayva.