Not good news

Ayva had her appointment w/ her Neurologist yesterday. He gave us the results of her EEG from the Tuesday before last. It was not good news. But let me first go into the long story of what happened before yesterday.

Monday Ayva woke up and was acting strange. It seemed like her hips hurt and she cried and jerked every time you moved her. So I took her to the chiropractor and he adjusted her. It seemed to have helped but she was still acting strange. So I had a feeling that she was having seizures again. It was just a gut feeling. I called and her Dr. was out of the country. The scheduled her for an EEG for the next day and would at least tell me if she was having seizures again or not. Well not even 2 hours of us being home, the phone rang. It was her Neuro's nurse. Another Dr. looked at it and said that she was having seizures, but it wasn't Infantile Spasms. Which I thought was good because IS is the worst type of seizure a child can have.... Well yesterday we had an appointment with her regular Dr. to see what type of medicine we should try. He then dropped the bomb on us- she WAS having Infantile Spasms again. The Dr. that read it the other day wasn't trained to read EEG's. He was wrong. So our hopes were up and then of course we were let down. Anyway her Dr. is going to try Depakote and if that doesn't work she will probably go on the Ketogenic Diet. I hope we don't have to go down that road. We shall see...

We also took the kids to the zoo for the first time yesterday after her appointment. It was really fun and REALLY hot. I will post some pics later... I'm not really in the mood after all that... I think a nice big bowl of soul-healing ice cream might make me feel a smidge better....but probably not.

Phone pics

Just posting some pics that I took with my phone...

Justin and Me at the park.

Justin at the park.

Justin all tuckered out.

Ayva all tuckered out.

Ayva all bright-eyed.

Anna in brother's hat.

Ayva at the park.

Anna "hugging" Justin.

Anna at the park.

Anna: "Anyone up for some Left 4 Dead on X-Box?"

Anna can't get enough of her paci's!!

Anna also loves her toes! Yummy!

Anna at the park w/ mommy's sunglasses.

Ayva at the park with mommy's sunglasses.


Anna today after the chiropracter....exhausted.


Justin on a bike!!!

Fun in the BALLS!!!

Justin took the kids' ball pit out of the garage the other day and put it in Little Justin's room. Anna and Justin LOVED it! And now everytime Justin goes in his room he says, "BALL!"

Justin's 1st Haircut

On Saturday we took Justin to get his first haricut. We took him to a kids haircut place and it was expensive, but for the first time, it was a cute place.

Before

He didn't like her touching his head!

He did get to sit in a Yellow Hummer like Grandma Dee Dee

After

Catching up!

Just thought I would catch everyone up since I've been a little MIA lately. The girls got their DAFO's (leg braces) last Friday. They are to help keep their feet from turning inward and for overall support.

This is the best pic of Ayva I have been able to get with her braces on! LOL.

Here is Anna with some shoes I bought to go over the braces

The kiddos turned 20 months this Wednesday! I can't believe only 4 short months until they are 2! That sounds crazy to me! Here are their stats for their 19 month check up (which they just had on the 10th. Ayva was in the hospital when their 18 month was scheduled and I couldn't get an appt. until then)

Anna: 17 lbs. 10 oz. Height: 29 1/4 Head Circ.: 17 1/4

Ayva: 18 lbs. 4 oz. Height: 28 Head Circ: 17 1/4

Justin: 20 lbs. 3 oz. Height: 30 3/4 Head Circ: 17 3/4

They are SOOOOO small for their age. Under 3% for everyting- except for Justin's head. It finally made 3%. Hey...it's a start, right?

In other news, I've been taking the girls to the chiropractor and he's been helping with their tone and other issues. They have been doing really good and I'm glad I let my mom talk me into it.

Anna is standing great with the braces on. She is crawling everywhere and is sitting up for almost a minute unassisted!

Ayva is sleeping MUCH better. She only wakes up about once a night now! She is happier, smiling and even laughing a little. She is getting better control of her head and is lifting it up off the ground more each day!

Justin is still getting into everything! He is running everywhere and talking up a storm. He is in the stage where you can say, "Justin, say_____" and he will! It's really funny! He has also figured out how to take his clothes off in his bed....and I think it's only a matter of time until he learns how to take off his diaper!

Our 4th of July

We had a GREAT 4th of July this year. I think it was the best one yet! We always go to Parkville and watch the firework show, but this year we drove ourselves and took the kiddos and chairs. It went SO good, and I'm glad the kids all did so well! I am SOOOO glad it didn't rain on us....because it really looked like it was going to...but it just missed us and we all stayed dry!

Random pics

This morning was SO funny. Anna and Justin were fighting over who could be in this box and finally they got in it together....sharing...it's progress.

Then after a while Justin got tired of the box and left it all to Anna!

The best 4th of July pic I could get...

HAPPY 4TH OF JULY EVERYONE!!!