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Monday, April 19, 2010

BIG NEWS!!

Justin and I are expecting our FOURTH baby!!!

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I am 7 weeks 5 days along and Due December 1st. We are both really excited it's just one baby this time :)

I'm feeling a little sick, but all is well and we're just SO happy!!

Monday, April 12, 2010

Picture Post

This weekend was GREAT! The weather was nice, we got to hang outside almost ALL weekend. Justin made a super nice play area for the kids. It has a sandbox, a water table and a picnic table! They really like it! Little Justin asks me to take him out to play all the time now :)

So here are a few pics from Easter
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And a few from our weekend outside :)
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Friday, April 9, 2010

It's been a while!

I've been a little MIA lately, but hopefully will be blogging on a regular basis soon ;)

Ayva is doing well on the Ketogenic Diet. She is more alert and happy. You can just see in her eyes she is more "in there", you know? Like the light is on and someone is home. At least sometimes. She has a follow up EEG on April 16th. It will be the first one since she started the diet in February. We're keeping our fingers crossed.

We did have an appointment w/ Dr. A a couple of weeks ago and he asked how she was doing. I told him more alert but also her reflux is better. He said, "Hmmmm." and I said "What?". Dr. A said that usually the diet makes reflux WORSE because of the high fat/ low carb and sugar ratio. BUT when children's seizures either get better or go away, their reflux tends to go away from no seizures.... we are hoping that's the case!

He said that if she isn't having hypsarrythmia on the 16th, then we can start weaning her off the Depakote.

I spoke to him about Anna as well. He said that Topamax (which is what she's on) can have some side effects like poor balance, trouble w/ memory and speech. So on the 16th, he will give Anna a new prescription for another medicine that has no side effects! He doesn't want to take her off meds completely just yet because of Ayva's problems, but a change could be really good for her! I can't wait to see if it helps in any way!

All the kids like school. Justin only cries for a few minutes when I leave now, so that's a plus! We are getting a little antsy about the weather starting to be nice!

OH YEAH! We will be walking in the Trolley Run on April 25th, 2010. It is to support the kiddos school CCVI (or Children's Center for the Visually Impaired). If you'd like to join our team and walk with us, just email me! OR if you'd just like to donate you can click here.

I will leave you all with some new pics of the kiddos!

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Tuesday, March 23, 2010

Purple Day is coming...

This Friday...

March 26th...

Is Purple Day!

Will you join us by wearing purple...

In honor of Anna and Ayva...and all of their seizure friends?!

Click here to learn more about Purple Day
and the extraordinary little girl who launched the event.

Ridin' the Carousel

On Saturday we went to the mall and they have a really neat children's play center there. Justin and I took Anna and Justin on the carousel that they have there!

Friday, March 5, 2010

The song of our lives...

This song by Rob Thomas pretty much sums up how I feel about the situation with our girls...

Someday

You can go
You can start all over again
You can try to find a way to make another day go by
You can hide
Hold all your feelings inside
You can try to carry on when all you want to do is cry

[Chorus]
And maybe Someday
We'll figure all this out
Try to put an end to all our doubt
Try to find a way to make things better now and
Maybe someday we'll live our lives out loud
We'll be better off somehow
Someday

Now wait
And try to find another mistake
If you throw it all away then maybe you can change your mind
You can run, oh
And when everything is over and done
You can shine a little light on everything around you
Man it's good to be so warm

[Chorus]

And I don't want to wait
I just want to know
I just want to hear you tell me so
Give it to me straight
Tell it to me slow

Cause maybe someday
We'll figure all this out
We'll put an end to all our doubt
Try to find a way to just feel better now and
Maybe someday we'll live our lives out loud
We'll be better off somehow
Someday
Cause sometimes we don't really notice
Just how good it can get
So maybe we should start all over
Start all over again

Really cute videos of Anna!