Tuesday, April 20, 2010

Results from Ayva's first EEG since starting the Keto Diet!!!!

NO MORE HYPPSARRYTHMIA!!!!!!!!!!!! WE ARE SOOOOO EXCITED!!!

Dr. A FINALLY called today after some not-so-nice messages left by me. A quick 30 second phone call was all it took to tell me she isn't having hypps. anymore! BUT, she is having another type of little seizure (he didn't say what kind in our nanosecond conversation). He thinks that continuation on the diet will make those seizures go away also! :) We will stay on all the meds for now (Topamax, Depakote, and Tranxene) since she is having these new "little seizures". I call them "little seizures" because that is what Dr. A called them.

So, we are extremely grateful to everyone who kept her in your thoughts, and prayed for her miracle. We hope this is it.

I leave you with a pic of our little fighter!!!
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Monday, April 19, 2010

BIG NEWS!!

Justin and I are expecting our FOURTH baby!!!

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I am 7 weeks 5 days along and Due December 1st. We are both really excited it's just one baby this time :)

I'm feeling a little sick, but all is well and we're just SO happy!!

Monday, April 12, 2010

Picture Post

This weekend was GREAT! The weather was nice, we got to hang outside almost ALL weekend. Justin made a super nice play area for the kids. It has a sandbox, a water table and a picnic table! They really like it! Little Justin asks me to take him out to play all the time now :)

So here are a few pics from Easter
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And a few from our weekend outside :)
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Friday, April 9, 2010

It's been a while!

I've been a little MIA lately, but hopefully will be blogging on a regular basis soon ;)

Ayva is doing well on the Ketogenic Diet. She is more alert and happy. You can just see in her eyes she is more "in there", you know? Like the light is on and someone is home. At least sometimes. She has a follow up EEG on April 16th. It will be the first one since she started the diet in February. We're keeping our fingers crossed.

We did have an appointment w/ Dr. A a couple of weeks ago and he asked how she was doing. I told him more alert but also her reflux is better. He said, "Hmmmm." and I said "What?". Dr. A said that usually the diet makes reflux WORSE because of the high fat/ low carb and sugar ratio. BUT when children's seizures either get better or go away, their reflux tends to go away from no seizures.... we are hoping that's the case!

He said that if she isn't having hypsarrythmia on the 16th, then we can start weaning her off the Depakote.

I spoke to him about Anna as well. He said that Topamax (which is what she's on) can have some side effects like poor balance, trouble w/ memory and speech. So on the 16th, he will give Anna a new prescription for another medicine that has no side effects! He doesn't want to take her off meds completely just yet because of Ayva's problems, but a change could be really good for her! I can't wait to see if it helps in any way!

All the kids like school. Justin only cries for a few minutes when I leave now, so that's a plus! We are getting a little antsy about the weather starting to be nice!

OH YEAH! We will be walking in the Trolley Run on April 25th, 2010. It is to support the kiddos school CCVI (or Children's Center for the Visually Impaired). If you'd like to join our team and walk with us, just email me! OR if you'd just like to donate you can click here.

I will leave you all with some new pics of the kiddos!

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