Thursday, October 29, 2009

Some Videos

The first video is of Anna DRINKING OUT OF A STRAW!! That is BIG news for Annie!

And this second video is of Justin. He is so funny. He didn't want to take any sort of a nap that day, and this was the end result.

Saturday, October 24, 2009

Holland

I've came across this before, and now I think it's a good time to share it with all of you.

Welcome to Holland
By Emily Perl Kingsley

I am often asked to describe the experience of raising a child
with a disability to try to help people who have not shared
that unique experience to understand it, to imagine how it
would feel. It's like this:
When you're going to have a baby, it's like planning a fabulous
vacation trip to Italy. You buy a bunch of guidebooks and make
your wonderful plans: the Coliseum, Michelangelo's David, the
gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting.
After months of eager anticipation, the day finally arrives. You pack your
bags and off you go. Several hours later, the plane lands. The stewardess
comes in and says, "Welcome to Holland."
"Holland?!?" you say. "What do you mean Holland? I signed up for Italy!
I'm supposed to be in Italy. All my life I've dreamed of going to Italy."
But there's been a change in the flight plan. They've landed in Holland
and there you must stay.
The important thing is that they haven't taken you to a horrible,
disgusting, filthy place, full of pestilence, famine and disease. It's just
a different place.
So you must go out and buy new guidebooks. And you must
learn a whole new language. And you will meet a whole new group
of people you would never have met.
It's just a different place. It's slower-paced than Italy, less flashy
than Italy. But after you've been there for a while and you catch your
breath, you look around and you begin to notice that Holland has
windmills – and Holland has tulips. Holland even has Rembrandts.
But everyone you know is busy coming and going from Italy ... and they're
all bragging about what a wonderful time they had there.
And for the rest of your life, you will say, "Yes, that's where
I was supposed to go. That's what I had planned."
And the pain of that will never, ever, ever, ever go away, because
the loss of that dream is a very, very significant loss.
But if you spend your life mourning the fact that you didn't get to
Italy, you many never be free to enjoy the very special, the
very lovely things about Holland.

::sigh::
Image and video hosting by TinyPic

Thursday, October 15, 2009

23 months old!

W.O.W. 23 months old today. I really cannot believe that in one short month my babies will be TWO!!!!! It seems
like these past 2 years have flown by. It will be a happy moment when
they turn 2, but also a sad one. Last year, I was hoping that by this
year Ayva would be seizure free. It's not looking like that is going to happen,
but I try to stay a little hopeful. Anyways, here are some new pics of the trio
in their halloween costumes!

Image and video hosting by TinyPic

Image and video hosting by TinyPic
Anna the Kangaroo

Image and video hosting by TinyPic

Image and video hosting by TinyPic
"Mom! I don't want to be a kangaroo!"

Image and video hosting by TinyPic
Justin the Monkey
Image and video hosting by TinyPic


Image and video hosting by TinyPic
Ayva the Lion

Image and video hosting by TinyPic

Sunday, October 11, 2009

How it went

Her surgery went well. She had to stay overnight b/c the hospital has a policy that if you are under 2 you have to stay overnight. She will be 2 next month. Anyways I can already tell that this was a good decision we made for her. More food in her belly means more energy! And she is awake more and happy! She's probably also happy b/c she hasn't had to take any of her medicines by mouth since Thursday morning! She HATED her medicine and now she is just overall a happier kiddo! :)

Thanks to everyone who kept her in your thoughts! We really appreciate it!

Wednesday, October 7, 2009

Tomorrow...

Tomorrow is Ayva's G-tube surgery. Although they haven't called to tell me what time to bring her, it will be tomorrow sometime. Wish us luck.

I heard a song on the radio yesterday and I instantly thought of my girls (well Ayva especially). It's Rob Thomas- Someday. If you have a chance you should listen to it.

I will try to update tomorrow if I can. I will almost definatly post something on Facebook. Thanks for everyone's prayers and good thoughts for tomorrow.

Tuesday, October 6, 2009

Prayers for Trevor!!

Please say a little prayer for Trevor today. He is having brain surgery for the demon in his brain (aka Infantile Spasms). He is such a sweet, adorable little boy.

www.trevorshope.blogspot.com

Thursday, October 1, 2009

Must Read!!

I MADE A WEBSITE ABOUT SPREADING AWARENESS FOR INFANTILE SPASMS! PLEASE GO CHECK IT OUT AND TELL OTHERS ABOUT IT!!!

WWW.WIX.COM/SAUCYSARIE/INFANTILE-SPASMS-AWARENESS