They called me on Thursday and said she does in fact have an allergy to milk and soy. Great- that's one more thing I need to worry about. Anyway they tell me to switch her to Nutramigen, not to feed her anything w/ milk or soy and to put some medicines on her as prescribed. Today- Her skin seems less rashy and she is less itchy. Here is a pic of her in her long sleeves, hat and tights to keep her medicine on
And here is a pic of one of her rashy-ier spots that I took on Wednesday at the doctor.
And one where you can see the redness around her eyes and under chin around her neck.
THEN- Thursday we had a follow up appointment for Ayva at the Neuro. She weighs 22lbs. which is really, REALLY small for an almost 4 year old. They are increasing her calories and adjusting her Keto Diet to help w/ weight gain and seizure control. She is still having about 2 seizures a day, so hopefully when we get the new formula in the mail, we can get those last few seizures to hit the road. She was in a pretty good mood that day- smiley as you can see
Hopefully things get better from here on out--because I'm seriously tired of one step forward, ten steps back.
