Woah.

WELL... I called to get Camryn an allergy appointment due to the horrible eczema rash she has been sporting for way too long.  They had a cancellation and could get us in on Wednesday.  I took her and they agreed that it is definitely something and decided to test her blood for a milk/soy allergy.  After 4 hours in the doctor room and the outpatient lab (that's a whole nother story as to why we were there so long!) We left w/ some skin care routines in mind and they said I should call on Monday for the blood test results.
   They called me on Thursday and said she does in fact have an allergy to milk and soy.  Great- that's one more thing I need to worry about.  Anyway they tell me to switch her to Nutramigen, not to feed her anything w/ milk or soy and to put some medicines on her as prescribed.  Today- Her skin seems less rashy and she is less itchy.  Here is a pic of her in her long sleeves, hat and tights to keep her medicine on


And here is a pic of one of her rashy-ier spots that I took on Wednesday at the doctor.


And one where you can see the redness around her eyes and under chin around her neck.


THEN- Thursday we had a follow up appointment for Ayva at the Neuro.  She weighs 22lbs. which is really, REALLY small for an almost 4 year old.  They are increasing her calories and adjusting her Keto Diet to help w/ weight gain and seizure control.  She is still having about 2 seizures a day, so hopefully when we get the new formula in the mail, we can get those last few seizures to hit the road.  She was in a pretty good mood that day- smiley as you can see


Hopefully things get better from here on out--because I'm seriously tired of one step forward, ten steps back.