Not good news

Ayva had her appointment w/ her Neurologist yesterday. He gave us the results of her EEG from the Tuesday before last. It was not good news. But let me first go into the long story of what happened before yesterday.

Monday Ayva woke up and was acting strange. It seemed like her hips hurt and she cried and jerked every time you moved her. So I took her to the chiropractor and he adjusted her. It seemed to have helped but she was still acting strange. So I had a feeling that she was having seizures again. It was just a gut feeling. I called and her Dr. was out of the country. The scheduled her for an EEG for the next day and would at least tell me if she was having seizures again or not. Well not even 2 hours of us being home, the phone rang. It was her Neuro's nurse. Another Dr. looked at it and said that she was having seizures, but it wasn't Infantile Spasms. Which I thought was good because IS is the worst type of seizure a child can have.... Well yesterday we had an appointment with her regular Dr. to see what type of medicine we should try. He then dropped the bomb on us- she WAS having Infantile Spasms again. The Dr. that read it the other day wasn't trained to read EEG's. He was wrong. So our hopes were up and then of course we were let down. Anyway her Dr. is going to try Depakote and if that doesn't work she will probably go on the Ketogenic Diet. I hope we don't have to go down that road. We shall see...

We also took the kids to the zoo for the first time yesterday after her appointment. It was really fun and REALLY hot. I will post some pics later... I'm not really in the mood after all that... I think a nice big bowl of soul-healing ice cream might make me feel a smidge better....but probably not.