Just a short post to catch up

Ayva had another EEG yesterday which still showed her having hypssarythmia (which is the abnormal brain wave pattern associated with Infantile Spasms). And even though we aren't noticing really any "seizures" , her neuro wants to change things up. On Monday February 8th she will be admitted into Children's Mercy Hospital and begin the Ketogenic Diet. It's basically a stricter form of the Atkins Diet and hopefully this change will help my sweet princess become seizure free!!! We really need a break, so we are all hoping that this is our miracle ticket. I will update again when I know some more about it/ or when we get there.

In Anna news, we are still waiting for the arrival of her KidWalk gait trainer (aka a walker). I am super excited about it and cannot wait to see her walk in it!

In Justin news, we have started POTTY TRAINING!!!! We are on day 4 now and I think he is getting the hang of it. I had quite a few appointments this week, so it probably wasn't the best week to start, but he's still doing pretty good- considering he's a boy and is very easily distracted.

IN EVERYONE NEWS, the kiddos are going to start SCHOOL next week! They will all be attending the Children's Center for the Visually Impaired. The girls will get most of their therapies there and Justin will get to go as a peer!

Winter 2009

Today, Ashtin and I took Justin and Anna out to play in the snow (it was pretty cold and windy, so we thought it best not to take Ayva out today).

Here are some videos of them sledding for the first time. Really, they are experiencing the snow all together for the first time!

Make photo slide shows at www.OneTrueMedia.com

2009- A look back in pictures

Here is a recap of our 2009. And Here's to 2010 being a better one than the last.

January

February

March

April

May

June

July

August

September

October

November

December

A Picture update :)

Not much really going on around here....I've been busy taking care of the kiddos and with the holiday coming up. But thought it would be nice to share some pictures that I took of Anna and Justin today while I was waiting for the therapist to come (Ayva was taking a nap)

Anna working on her sitting

Justin

Justin blowing Mommy kisses

Anna showing off her big toothy grin!

It seems like it's been forever

since I blogged about our lives. We're pretty much just truckin' along...nothing much has changed. Ayva doesn't see the Neuro until January. It seems EVERYTHING is happening in January. Ayva's neuro appt., the kids *late* 2 year check up, a follow up cardio appt. .....and the list goes on and on... Seizure wise....Oh I don't know...it's SO hard to tell if she is having any or not. She is VERY easily startled, and that is exactly what her seizures look like. I'm HOPING that they are just startles and not seizures, but who knows! Ayva is getting to start Aqua-Therapy soon and will be joining Anna- who LOVES it! I think it's done her a lot of good! They have a developmental Pediatrician appointment on Monday and next week is Ayva's follow up for her G-tube.

Speaking of G-tube..Ayva has gained almost 2 WHOLE POUNDS! Which is fabulous! Everyone is doing good and just thought you all would like an update! I will leave you with some recent pics!

Justin checking out the train at Crown Center

Anna watching the train from her stroller

Granny with Justin

Granny with Anna

My sweet girlies

Tomorrow I will try and post some pictures from their birthday and such...hopefully.

Win $100 and a Gift Basket from Aquaphor!

Go check out Little Bites of Heaven's Giveaway!

http://http://morelittlebites.blogspot.com/2009/11/aquaphor-gift-basket-100.html

You could win $100 Visa Gift Card and a VERY nice Gift Basket from Aquaphor!!

Prematurity Awareness Day

Just 2 years and 2 days ago, my trio were born 11 weeks early.
Anna weighed just 3 lbs 1 oz.

Ayva also weighed 3 lbs 1 oz.

And Little Justin weighed 2 lbs 15 oz.

They spent a horrific 55 (for Anna) and 57 (for Ayva and Justin) days in the NICU battling infections and trying to learn how to eat, and keep their temperature up and everything a full term baby will automatically know.


Visit March of Dimes Prematurity Awareness Month to learn how you can help.