Friday, September 23, 2011

My little baby is 10 months old today

It seems like she was born yesterday...  It's strange how babies go from looking like this one day
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To looking like this the next.
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She is SO big.  She nods her head when you ask her things


She waves and I *think* she says Hi.  She can crawl and stand, and climb! :)


Her eczema is SO.MUCH.BETTER.  We've taken out all her milk/soy products and she has only had a few setbacks (with strawberries and peaches-- and Justin giving her a piece of chocolate) but she hasn't broke out into the horrible, whole body consuming rash that she once was!

I'm going to take her 10 month pics later today and hopefully I will get a chance to edit them soon! :)
OK...here they are:
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Wednesday, September 21, 2011

We played hookie...

Yesterday was such a lovely day and my mom had the day off from work, so we decided to let the girls play hookie from school and go to the park.  Everyone had fun, and I got a few pictures.  I think it went as well as expected for the two of us with 4 kids and only one of them can walk :/    Anna and Camryn loved the swings--but when it was time to get Anna out of the swing it was a bit of a problem.  She tends to keep her legs locked when she has her braces on and my mom couldn't get her out!  Then I went over and tried to get her out and was having trouble!  Then a very nice lady (who didn't speak any English) came over and helped me.  It's sad when you are having so much trouble that a stranger feels the need to help.  Oh well...   Anyway back to the pictures! :)
Camryn
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Anna
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Justin
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Ayva (she wasn't really in the mood for a photo shoot)
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And one of all of us
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Oh- I almost forgot.  I gave Camryn strawberry puree yesterday in her oatmeal and she had a reaction.  Boo.  I guess we'll add that to the list of allergies :(

Friday, September 16, 2011

Woah.

WELL... I called to get Camryn an allergy appointment due to the horrible eczema rash she has been sporting for way too long.  They had a cancellation and could get us in on Wednesday.  I took her and they agreed that it is definitely something and decided to test her blood for a milk/soy allergy.  After 4 hours in the doctor room and the outpatient lab (that's a whole nother story as to why we were there so long!) We left w/ some skin care routines in mind and they said I should call on Monday for the blood test results.
   They called me on Thursday and said she does in fact have an allergy to milk and soy.  Great- that's one more thing I need to worry about.  Anyway they tell me to switch her to Nutramigen, not to feed her anything w/ milk or soy and to put some medicines on her as prescribed.  Today- Her skin seems less rashy and she is less itchy.  Here is a pic of her in her long sleeves, hat and tights to keep her medicine on
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And here is a pic of one of her rashy-ier spots that I took on Wednesday at the doctor.
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And one where you can see the redness around her eyes and under chin around her neck.
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THEN- Thursday we had a follow up appointment for Ayva at the Neuro.  She weighs 22lbs. which is really, REALLY small for an almost 4 year old.  They are increasing her calories and adjusting her Keto Diet to help w/ weight gain and seizure control.  She is still having about 2 seizures a day, so hopefully when we get the new formula in the mail, we can get those last few seizures to hit the road.  She was in a pretty good mood that day- smiley as you can see
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Hopefully things get better from here on out--because I'm seriously tired of one step forward, ten steps back.

Saturday, September 10, 2011

JazZoo!

Tonight the whole family went out to the zoo! They were having an extra special night of activities called JazZoo and it was REALLY fun.  The weather was nice- it rained a little, but not much-  and there was free food and drinks! (Thanks to Kelly for giving us the tickets!)  They had face painting and Justin and Anna each got their face painted!  The lady asked Justin what he wanted on his face and he said "A zombie" and she asked him if he wanted to be a animal since we were at the zoo and he said "No, I want to be a zombie". So here he is! :)
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Anna wanted to be a fairy--
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Zombie on the carousel
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And a few videos of the new polar bear exhibit!  It was awesome!



Wednesday, September 7, 2011

Hello again...

Hi all.  I have been a serious slacker in the blog department.  3 year old triplets and a 9 month old keep me really busy.  I will update you all on what's happened since I stopped writing and then hopefully I will keep it updated.

The big girls started school last week!  They are already doing so well!! Here are a few pics of them waiting for the bus.
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Anna is doing GREAT walking in her walker there.  I got to go and watch her the other day and I cried I was so happy to see my oldest girl walking!!  Here is the video I got of her
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AND Anna should be getting a power wheelchair soon! We are so excited!  I can't wait for her to get it and figure out how to get around in it! She wants to go SO badly.  There is a loaner at the school and we should be ordering hers soon!

Anna has also been talking up a storm! She can say pretty much anything you ask her to say and now she is saying things like "I wanna go" and "I wanna go outside" ALL BY HERSELF! No prompting from me! She is also doing really good at feeding herself now and I couldn't be prouder of her!!!

AYVA.  Ayva is doing pretty good.  We gave her her own "room" in our room the other day. It is much more quiet and we are hoping that it will reduce the amount of seizures she has.  Ayva's seizures are now triggered by sound. Well, I think the sound scares her, and that triggers a seizure.  Either way a quiet room is better for her. I think she truly loves it because when I put her in her bed for the first time in our room, she instantly fell asleep!  She is doing good at school so far and I hope that we can get these seizures under control soon so she can start catching up to her siblings.

Justin is....well Justin.  He is so smart and funny and now he is at the stage of pretending.  It's so fun to see him want to play doctor or pretend he is a superhero. I love it.  He is a great big brother.

Camryn, my little chunky monkey is NINE MONTHS OLD! I can't believe it!!! Last time I updated the blog she was only 5 months!  She is a crawling, moving, getting-into-everything ball of energy. Yesterday she even stood by herself and took a step!!!  She is a great baby and is always happy (unless she's hungry).  Here are a few pics of her "month" photo shoots!!

6 months
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7 months
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8 months
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9 months
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